Patient Advocate with Personal Experience to Speak on Dialysis

Full access

Amanda Grandinetti, MPH

Citation: Kidney News 15, 10/11

A patient who has experienced dialysis and transplant and is also an outcomes researcher will speak on “PROs and PROMs Are What Matter Most to Patients” at the Celeste Castillo Lee Endowed Lectureship on Saturday, November 4. The lecture will be presented during a session titled “Innovation in Dialysis: Better Together.”

Amanda Grandinetti, MPH, is a research methodologist and PhD candidate specializing in patient-reported outcomes in drug and device development. With a career dedicated to incorporating the patient perspective and outcomes into all aspects of health care delivery, Ms. Grandinetti is passionate about helping kidney patients access high-quality, affordable care. She describes her commitment to kidney advocacy as not just a hobby but a way of life.

Ms. Grandinetti experienced focal segmental glomerulosclerosis as a child and then kidney failure as a young adult. She underwent hemodialysis before receiving a kidney transplant from a friend in 2013, which was unsuccessful after 3 weeks. She then underwent peritoneal dialysis while pursuing her master's degree. In 2014, she received her second transplant from another friend, and has since maintained kidney function.

Ms. Grandinetti currently serves on the board of directors of the Kidney Health Initiative and previously served as chair and vice chair of the Kidney Health Initiative Patient and Family Partnership Council.

She has extensive experience in both nonprofit and industry settings, collaborating with pharmaceutical companies, such as the former Goldfinch Bio, AstraZeneca, and ProKidney, to integrate patient-reported outcome measures into device and drug development. Ms. Grandinetti has also participated in technical expert panels led by the Centers for Medicare & Medicaid Services and has been a peer reviewer for the U.S. Department of Defense medical research programs.

Her diverse background in evidence-based research and clinical quality provides her with a unique perspective in her kidney advocacy efforts.

She received a BS in psychology and a master's degree in public health from Elmhurst University in Illinois. She is pursuing a doctorate in health sciences from Northern Illinois University with her dissertation focused on patient-reported outcome measures.