The title of the Celeste Castillo Lee Memorial Lectureship will be “Developing Actionable Patient Safety Outcome Metrics for Dialysis.” Scheduled for Sunday, Oct. 25, the speaker will be Allison Tong, PhD, MPH, a principal research fellow and professor at the Sydney School of Public Health, the University of Sydney in Australia.
Dr. Tong has extensive experience in patient-centered outcomes research in chronic disease, particularly CKD. Her work focuses on patient involvement in research, including in the context of research priority setting, the development of core outcomes for research, and in the co-production of clinical trials. She co-founded and is on the Executive Committee of the global Standardized Outcomes in Nephrology (SONG) Initiative, which aims to establish consensus-based core outcomes across the spectrum of CKD. She established the Patient-Centered Research Network (PACER), which aims to facilitate knowledge exchange, cross-disciplinary collaboration, patient involvement, and innovation in conducting patient-centered outcomes research.
She is associate editor of CJASN, the American Journal of Transplantation, American Journal of Kidney Disease, Transplantation, BMC Medical Research Methodology, BMJ Open, Nephrology, and Research for All, and is a reviewer for more than a dozen journals.
Among her many activities, she chairs the patient-reported outcomes working group of the European Society of Transplantation and is a member of the patient engagement work group of the International Society of Nephrology Advancing Clinical Trials, the patient-reported outcome measures group of the Australian and New Zealand Dialysis and Transplant Registry, the scientific program and education committee of the Transplantation Society of Australia and New Zealand, and the transplant working group of the Australian Kidney Trials Network.
She has received an award for outstanding mid-career research from the University of Sydney, the Ian McKenzie Award for Outstanding Contribution to Transplantation from the Transplantation Society of Australia and New Zealand, the Kidney Health Australia Prize for the Best Presentation in the Field of Clinical Research, and the Young Investigators Award from the Children’s Hospital at Westmead.
She received a PhD and MPH from the school of public health at the University of Sydney, and master of management in community management from the University of Technology in Australia. She was the recipient of a career development fellowship from the Australian National Health and Medical Research Council.