Urgency and innovation are frequent themes in the kidney community. The Kidney Health Initiative (KHI) holds an annual meeting to translate these themes into reality. A public-private partnership with the U.S. Food and Drug Administration (FDA) and over 90 companies and organizations from various stakeholder groups in the kidney community, KHI was established to spur innovation and enhance patient safety.
Patients took center stage at the 2018 KHI Stakeholders Meeting, held in Silver Spring, MD, May 14–15. Each session at the meeting included a patient or care partner who provided the patient perspective on the session topic. Their personal stories and experiences highlighted the collective sense of urgency and communicated the need for advances in therapies for people living with kidney diseases.
KHI values the input of patients by integrating them into every aspect of the initiative. They serve on the KHI Board of Directors and in project workgroups. In 2015, KHI formed the Patient and Family Partnership Council (KHI PFPC), which is made up of 10 patient and care partner advocates representing different therapies and kidney diseases.