Policy-Advocacy

How KidneyX and the RRT Roadmap Can Realize the HHS’s Goals for an Artificial Kidney

While there were many exciting pieces to last week’s announcements that will improve the care of the patients we treat, the attention paid to the artificial kidney is particularly exciting. We believe that Advancing American Kidney Health will increase investment, interest, and innovation in improving kidney care and ultimately curing kidney diseases. Our patients deserve to see the hope generated by Advancing American Kidney Health realized. KHI and KidneyX are determined to do our part to achieve these goals. Our patients deserve no less.

Trump Administration announces first major transformation in kidney care in 50 years, Advancing the American Kidney Health Initiative

In the first major transformation in kidney care in almost 50 years, the Trump Administration today announced the Advancing the American Kidney Health initiative. The comprehensive kidney health strategy will bring sweeping changes to care for people with kidney diseases, including more choices for dialysis modalities, greater access to transplantation, and concerted support for development of innovative therapies, including artificial kidneys.

Statement from ASN President Rosenberg on new Advancing American Kidney Health Initiative announced today

"The American Society of Nephrology (ASN) applauds the bold vision unveiled today by President Donald J. Trump and by Department of Health and Human Services (HHS) Secretary Alex Azar, II, in the Advancing American Kidney Health initiative.  Before an audience of more than 500 individuals with kidney diseases, nephrologists, and other kidney community advocates, President Trump signed an Executive Order launching the initiative."

Breaking: HHS announcing rollout of new kidney strategy July 10th

Wednesday, July 10, the Trump administration will announce a new Department of Health and Human Services-wide (HHS) Comprehensive Kidney Care strategy. ASN and other kidney care groups have been working and meeting with Administration officials, including Secretary Alex M. Azar, II, all year providing input and recommendations for inclusion of in the new strategy.

ASN Supports Patient Access to EHRs but Cautions HHS on Undue Burden and the Need for Greater Clarity in the Proposed Rules

In February, the Centers for Medicare & Medicaid Services (CMS) and the Office of the National Coordinator (ONC) for Health Information Technology released a set of proposed rules to address interoperability, information blocking, and patient access to data and electronic health record (EHR) certification criteria.

CDC investigating large cluster of peritonitis cases in peritoneal dialysis patients

To report peritonitis cases that meet these criteria, please email CDC’s Dialysis Coalition email box DialysisCoalition@cdc.gov and Dr. Ana Cecilia Bardossy at ABardossy@cdc.gov using the subject line: “Peritonitis cases”. Include in your email your name and contact information, including phone number, and your clinic location (city and state).

Efforts to Support Living Donors and OPO Metric Improvements on the Way

The White House announced Tuesday that the administration is taking action on two policy priorities for ASN: improving the data used to evaluate Organ Procurement Organizations (OPOs) and removing financial barriers to living donation.

The Unified Spring Agenda, released May 22, provides insight into which issues the administration will address through a proposed rule process in the coming months. ASN urged Secretary Azar and other senior administration officials to address these issues during a February meeting and applauds its bold leadership on both fronts.

ASN and Partnership for Medicare Part D Access Prevail in Fight to Preserve Six Protected Classes

After strenuous objection from the American Society of Nephrology (ASN) and its fellow coalition members in the Partnership for Part D Access, the Centers for Medicare & Medicaid Services (CMS) issued a final rule on May 16, 2019, on Medicare Part D prescription drugs that dropped an earlier CMS proposal that would have undermined current protections for the six protected classes of drugs.

Q&A with Winners of the KidneyX Redesign Dialysis Phase 1

Kidney News Online reached out to all 15 winners of the KidneyX Redesign Dialysis Phase 1 competition to get more information on their projects.

All winners answered the following questions:

  1. Briefly summarize your project.
  2. What future goals do you have for your project after winning the KidneyX prize competition?

Funding Bill for NIH, KidneyX Receives Committee Approval and Moves Closer to Finalization

On Wednesday, May 8, the House Appropriations Committee voted to send the House Labor, Health and Human Services, and Education (LHHS) appropriations bill to the House floor for consideration. The bill and accompanying committee report provides a total of $189.9 billion in funding, a nearly $12 billion increase over FY 19 enacted levels, and includes a number of priorities of the American Society of Nephrology (ASN).

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