Policy-Advocacy

Dr. Ian de Boer on signs of a crisis in nephrology

In an article by Manisha Jha of The Daily student publication at the University of Washington, Dr. de Boer speaks personally about his recent CJASN articles based on burnout in nephrology.


"'We wanted to highlight that to the community that this is something that many people are experiencing and open a dialogue,” de Boer said.

President's Column: Kidney Innovation Accelerator

KidneyX will be a public-private partnership to incentivize accelerated development and commercialization of disruptive technologies to reduce the number of patients with ESRD and improve the experience of patients on dialysis.

Study: Medicare beneficiaries' financial burden

In a new January 2018 report by The Henry J. Kaiser Family Foundation, it was found that the “average out-of-pocket heath care spending as a share of average per capita Social Security income for Medicare beneficiaries is projected to rise from 41% in 2013 to 50% in 2030.

Dr. Dall'Era speaks about upcoming talk on Lupus Nephritis at Winter Rheumatology Symposium

Kidney News Online (KNO) spoke with Dr. Maria Dall’Era, a professor of medicine in the Division of Rheumatology at the University of California, San Francisco (UCSF) and director of the UCSF Lupus Clinic and the Rheumatology Clinical Research Center. She will present a talk on January 25th at the Symposium entitled “Update on Lupus Nephritis”. In the following, Dr. Dall’Era shares her thoughts.

Government Shutdown Halts Access for New Patients to NIH Clinical Trials – Costs Could Quickly Rise

Far from esoteric political maneuvering, government shutdowns are costly and have a real-world impact: the 16-day shutdown in 2013 cost the federal government an estimated $24 billion. Shutdowns have a human cost as well. During the 2013 shutdown, the National Institutes of Health (NIH) was forced to turn away nearly 200 people per week, including 30 children, from enrolling in new clinical trials, which serve as a last resort for many patients.

CMS to allow text messages, but only in secure systems/platforms and not for patient orders

The CMS accepts that text messages are an important means of communication in healthcare, and that text messages are now essential for effective communications between care team members. However, in order to comply with the Conditions of Participation (CoPs) and Conditions for Coverage (CfCs), healthcare organizations must use and maintain text messaging systems/platforms that are secure.

HHS Announcement to Launch Kidney Innovation Accelerator at ASN Kidney Week 2017 Available

At ASN Kidney Week 2017, Bruce D. Greenstein, U.S. Department of Health and Human Services (HHS), Chief Technology Officer, highlighted the need for innovation in the nephrology space.

New Podcast: ASN NephWatch

ASN NephWatch is a podcast examining current events and policy developments and the impact those events and developments have on the march for better care and cures for patients with kidney diseases. This podcast is a production of the ASN Policy and Government Affairs department.

 

ASN Partners with VA Center for Innovation on My Kidney Nutrition App Features Challenge

Around 17% of American adults have chronic kidney diseases (CKD), and the rate of prevalence is higher U.S. Veterans. CKD, if not treated appropriately, can ultimately lead to kidney failure requiring either dialysis or a transplant.

 

A new mobile app is needed that provides autonomy and personalized features to help patients make informed food choices.

 

Tax Reform Threatening to Decimate Pipeline of Future Scientists – all PhD Candidates

Before Thanksgiving, the House of Representatives passed H.R. 1, the Tax Cuts and Jobs Act, by a vote of 227 to 205. The vote largely fell along party lines, with no Democrats voting for the bill.  The House bill has several provisions of concern to the American Society of Nephrology (ASN), including one that could devastate the pipeline of future scientists.

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