Policy-Advocacy

American Society of Nephrology Announces KidneyX Chair

The American Society of Nephrology (ASN) announced today that John R. Sedor, MD, FASN, has been appointed Chair of the Kidney Innovation Accelerator (KidneyX) Steering Committee.logo_big_0.png

KidneyX Scores Major Victories in Congress and Administration

At the urging of the American Society of Nephrology (ASN) members and American Association of Kidney Patients (AAKP) ambassadors’ calls and recent visits to Capitol Hill, a bipartisan group of 57 lawmakers wrote to the House Appropriations Labor, Health and Human Services, and Education Subcommittee asking them to include $25 million in funding for KidneyX.

Innovative New Kidney Care Model in Development Highlighted at National Quality Forum

In a packed session of the National Quality Forum (NQF) in Washington, DC today, Adam Boehler, Deputy Administrator for CMS and Director and the Center for Medicare and Medicaid Innovation (CMMI), spoke about an upcoming comprehensive kidney care model being developed by CMMI and written about previously in KNO – as well as his vision of the role of quality and quality measurement in healthcare overall.

ASN and AAKP Advocates Are on Capitol Hill Urging Congress to Support KidneyX

Advocates from the American Society of Nephrology (ASN) and the American Association of Kidney Patients (AAKP) are meeting with representatives, senators, and their respective staffs today, March 20th, to urge Congress to support KidneyX, a public-private partnership to accelerate innovation in the prevention, diagnosis, and treatment of kidney diseases.

Potential game-changing exchange: Extending coverage for immunosuppressant drugs beyond 3-year limit for patients after a kidney transplant could help Medicare

In a potentially game-changing exchange yesterday at a House Appropriations subcommittee hearing, Health and Human Services (HHS) Secretary Alex M. Azar, II, stated that a preliminary HHS Office of the Actuary analysis indicates that the savings generated by averting dialysis would be greater than the cost required to extend coverage for immunosuppressant drugs. While noting that any potential savings would be “specific to the design of any actual policy,” the Secretary underscored that HHS is “very focused on ways we can incentivize toward transplantation.”

ASN statement: Secretary Azar’s speech on HHS-wide comprehensive kidney strategy

On Monday March 4th, Secretary Alex M. Azar II delivered a speech at the 6th Annual Kidney Patient Summit outlining both KidneyX and the strategic pillars of establishing an HHS-wide approach to comprehensive kidney care. ASN released a statement from ASN President Mark E. Rosenberg, MD, FASN, congratulating Secretary Azar and HHS on implementing this bold plan to better serve kidney disease patients and confirming ASN’s commitment to work together to achieve this goal.

850 million people suffer from kidney disease: Joint release from ASN, ERA-EDTA, ISN

In a joint press release in June 2018, ASN, ERA-EDTA, and ISN publicized that the current number of people who suffer from kidney diseases worldwide has reached over 850 million.

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The Living Donor Protection Act of 2019 Reintroduced in House and Senate

The Living Donor Protection Act of 2019, a longstanding priority of the ASN Policy and Advocacy Committee and the larger kidney and transplant community, has been reintroduced in the House of Representatives and Senate by Representatives Jaime Herrera-Beulter (R-WA) and Jerry Nadler (D-NY), and Senators Kristen Gillibrand (D-NY) and Tom Cotton (R-AR).

Data Blockers Beware - Annoucement at HIMSS19

In a bold move up the ladder of electronic health record (EHR) interoperability, the Centers for Medicare and Medicaid Services (CMS) and the Office of National Coordinator for Health Information Technology (ONC) released two proposed rules February 11 designed to allow patients access to their own records and data – particularly via apps – and provide strong deterrents to those who would block data.

Secretary Azar Convenes Value-Based Kidney Care Transformation Roundtable

The American Society of Nephrology (ASN) and other members of the kidney community met with Health and Human Services (HHS) Secretary Alex M. Azar II and other top HHS officials in a roundtable on Friday, February 1 to discuss value-based kidney care transformation.

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