Policy-Advocacy

ASN Supports Patient Access to EHRs but Cautions HHS on Undue Burden and the Need for Greater Clarity in the Proposed Rules

In February, the Centers for Medicare & Medicaid Services (CMS) and the Office of the National Coordinator (ONC) for Health Information Technology released a set of proposed rules to address interoperability, information blocking, and patient access to data and electronic health record (EHR) certification criteria.

CDC investigating large cluster of peritonitis cases in peritoneal dialysis patients

To report peritonitis cases that meet these criteria, please email CDC’s Dialysis Coalition email box DialysisCoalition@cdc.gov and Dr. Ana Cecilia Bardossy at ABardossy@cdc.gov using the subject line: “Peritonitis cases”. Include in your email your name and contact information, including phone number, and your clinic location (city and state).

Efforts to Support Living Donors and OPO Metric Improvements on the Way

The White House announced Tuesday that the administration is taking action on two policy priorities for ASN: improving the data used to evaluate Organ Procurement Organizations (OPOs) and removing financial barriers to living donation.

The Unified Spring Agenda, released May 22, provides insight into which issues the administration will address through a proposed rule process in the coming months. ASN urged Secretary Azar and other senior administration officials to address these issues during a February meeting and applauds its bold leadership on both fronts.

ASN and Partnership for Medicare Part D Access Prevail in Fight to Preserve Six Protected Classes

After strenuous objection from the American Society of Nephrology (ASN) and its fellow coalition members in the Partnership for Part D Access, the Centers for Medicare & Medicaid Services (CMS) issued a final rule on May 16, 2019, on Medicare Part D prescription drugs that dropped an earlier CMS proposal that would have undermined current protections for the six protected classes of drugs.

Q&A with Winners of the KidneyX Redesign Dialysis Phase 1

Kidney News Online reached out to all 15 winners of the KidneyX Redesign Dialysis Phase 1 competition to get more information on their projects.

All winners answered the following questions:

  1. Briefly summarize your project.
  2. What future goals do you have for your project after winning the KidneyX prize competition?

Funding Bill for NIH, KidneyX Receives Committee Approval and Moves Closer to Finalization

On Wednesday, May 8, the House Appropriations Committee voted to send the House Labor, Health and Human Services, and Education (LHHS) appropriations bill to the House floor for consideration. The bill and accompanying committee report provides a total of $189.9 billion in funding, a nearly $12 billion increase over FY 19 enacted levels, and includes a number of priorities of the American Society of Nephrology (ASN).

ASN President Mark E. Rosenberg, MD, FASN on fiscal year 2020 proposed budget of $41.4 billion for the National Institutes of Health

On behalf of the more than 40 million children, adolescents, and adults living with kidney diseases in the United States, the American Society of Nephrology (ASN) applauds the House Labor, Health and Human Services, Education, and Related Agencies Appropriations (LHHS) Subcommittee for their support of a Fiscal Year 2020 budget of $41.1 billion for the National Institutes of Health (NIH), an increase of $2 billion above the 2019 enacted level.

2019 Inaugural KidneyX Summit Day 2 Recap – In Case you Missed It

The KidneyX Summit continued today, April 30, 2019, with congressional perspectives; the role of NIH, FDA, and payors; and the nephrology investment landscape all addressed during the second day of the event.

ASN Helps Secure Appropriations Increase for NIH and NIDDK

On Monday, April 29, the House Labor, Health and Human Services, Education, and Related Agencies Appropriations (LHHS) Subcommittee released their Fiscal Year 2020 budget. The draft provides a total of $41.1 billion for the National Institutes of Health (NIH), an increase of $2 billion above the 2019 enacted level and $6.9 billion above President Trump’s budget request.

2019 Inaugural KidneyX Summit Day 1 Recap – In Case you Missed It

KidneyX_logo.PNGThe KidneyX Summit kicked off on April 29, 2019, with opening remarks by ASN President Mark Rosenberg, MD, FASN, who outlined how KidneyX is filling a much-needed gap in kidney care and will act as a catalyst to spur innovation in the space.

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