Advocates from the American Association of Kidney Patients and the American Society of Nephrology gathered in Washington, DC, on March 28, 2018, for the 6th Annual Kidney Health Advocacy Day (KHAD) to meet with lawmakers, share their stories, and discuss the need for greater innovation for patients with kidney diseases.
The group of nearly 50 kidney patients and physicians met with more than 60 legislators and their staff. Highlighting the barriers to innovation in kidney care and the consequences of the lack of innovation, advocates urged Congress to support KidneyX, a new public-private partnership to accelerate innovation in the prevention,
On Wednesday, April 14, advocates from the American Association of Kidney Patients (AAKP) and ASN will meet with their members of Congress during the 9th Annual Kidney Health Advocacy Day and call for passage of the Living Donor Protection Act of 2021.
A longstanding advocacy priority of ASN and the broader kidney health community, the Living Donor Protection Act guarantees that living donors have access to life, disability, and long-term care insurance with full coverage and without higher premiums and codifies that the Family and Medical Leave Act protects the employment of living donors after taking time off to donate
In July 2018, the House Appropriations Committee approved the annual Labor, Health and Human Services, and Education spending bill (LHHS), passing it to the House floor for consideration.
The bill, and its Senate counterpart, contain multiple priorities of the American Society of Nephrology (ASN), a direct result of the countless emails, meetings, and phone calls made by members to their legislators.
Chief among these priorities is a sizable increase for the National Institutes of Health (NIH). Working with peer organizations, ASN and its members were able to build on the momentum of previous years and advocate for a consistent, sustained
On March 16, 2017, President Trump released the annual White House Budget Request. Dubbed the “Skinny Budget,” the budget—while light on details—is heavy-handed in the cuts it proposes to non-defense discretionary (NDD) funding. Chief among the $54 billion worth of cuts to NDD funding is a $15.1 billion cut to the Department of Health and Human Services (HHS), roughly 18% less than the department received last year.
The National Institutes of Health (NIH), which resides within HHS, would receive an even larger cut proportionally. If enacted, President Trump’s budget would result in the loss of $5.8 billion, over 18% of
On Thursday, July 13, 2017, the House Labor, Health and Human Services, Education, and Related Agencies Appropriations (LHHS) Subcommittee approved the Fiscal Year 2018 budget by a party-line vote. One of the largest of 12 annual appropriations bills, the LHHS bill provides a $5 billion reduction in funding to the Department of Health and Human Services as compared to enacted 2017 funding. However, the legislation provides for a few exemptions from the cuts, including a $1.1 billion increase for the National Institutes of Health.
Under the normal appropriations process as outlined by the Congressional Budget Act, the President presents their
On Monday, April 23, the American Society of Nephrology and a record-setting coalition of 36 other organizations in the kidney community, authored a letter to the leadership of the House and Senate Appropriations Subcommittees that appropriate funds for the National Institutes of Health (NIH). ASN and others urged Appropriations leadership to support a $2.2 billion increase for the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) in Fiscal Year (FY) 2019, as well as a $150 million appropriation for a Special Kidney Program.
A procedural vote on a bill to fund the government failed in the Senate shortly before midnight on Friday, January 19, causing a partial government shutdown. The federal government, whose 2018 fiscal year began on October 1, was operating on a temporary funding measure which expired without another temporary measure, or regular legislation, in place to fund the government.
Negotiations over funding have been inhibited by a partisan divide on immigration and funding for the Administration’s planned wall on the southern border of the United States. Republicans need at least 11 Democrats to support a funding measure in the Senate to comply with procedural rules. While both parties are hopeful that they can resolve the dispute within the week and pass a funding bill, the debate is contentious and neither party has shown signs of compromise.
In response to concerns of the American Society of Nephrology (ASN) and peer societies, the House of Representatives unanimously passed a package of legislation on Tuesday, July 25th that includes important provisions that would expand the use of telehealth to facilitate the use of home dialysis. Called the Medicare Part B Improvement Act of 2017 (H.R. 3178), the legislation includes an earlier bill sponsored by Representatives Diane Black (R-TN) and Suzan DelBene (D-WA) that would designate the home as an originating site for telehealth services, allowing patients receiving home dialysis to receive clinical assessments via telehealth in their home.
On Friday, September 28, President Donald Trump signed into law the annual Labor, Health and Human Services, and Education (LHHS) funding bill for Fiscal Year 2019, which contains multiple priorities of the American Society of Nephrology (ASN).
As reported in the August edition of Kidney News Online, these priorities include a $2 billion funding increase for the National Institutes of Health (NIH), and language supporting KidneyX, the study of immunosuppressive drug coverage for kidney transplant patients, Family and Medical Leave Act (FMLA) coverage for living organ donors, and recognition of the discrepancy between investment in kidney research and financial burden of kidney diseases.
The Living Donor Protection Act of 2019, a longstanding priority of the ASN Policy and Advocacy Committee and the larger kidney and transplant community, has been reintroduced in the House of Representatives and Senate by Representatives Jaime Herrera-Beulter (R-WA) and Jerry Nadler (D-NY), and Senators Kristen Gillibrand (D-NY) and Tom Cotton (R-AR).
On February 15th, 2019, American Society of Nephrology (ASN) President Dr. Mark Rosenberg sent a letter to the lead sponsors of the legislation to commend their efforts to provide hope to the more than 700,000 Americans with kidney failure, including the nearly 100,000 people on the waitlist to receive a kidney.