2017 is drawing to a close, marking the end of a year that saw ASN Communities hit its stride within the nephrology social media landscape. Providing an interactive learning experience for nephrologists around the world has become the sites primary strength. Interacting on Communities reminds many practicing nephrologists of the iterative case conferences they had in residency. Both complicated and mundane discussions provide a springboard for nephrologists to finding their own answers and improving their own knowledge base.
What do Kidney Week and ASN Communities have in common? Even though one is online and the other in person, they are both destinations for kidney health professionals to discuss, network and collaborate around issues that are important to them. Kidney Week provides a physical context to build the relationships you have online.
Asking people with kidney failure what matters to them is critical for patient centered innovation. If that information can be collected in a scientifically rigorous way, it can inform industry and regulatory decision making.
The Kidney Health Initiative (KHI) is launching a new project in collaboration with the US Food and Drug Administration (FDA) to collect patient preference information on innovative renal replacement therapies (RRT). The three-year project, funded by the FDA, will produce a survey that captures scientifically valid patient preference and risk tolerance data from people with kidney failure to drive innovations in RRT. This information is increasingly important as innovation accelerates in the kidney community. The Advancing American Kidney Health initiative identified this need, directing the FDA to “develop a new survey to gain insight into patient preferences for new kidney failure treatments”.
The COVID-19 pandemic has brought new urgency to the need for alternatives to in center dialysis for people with kidney failure. Historically, integrating patient preferences into device development has been limited. Developments in the kidney community in recent years, including the KidneyX and the Advancing American Kidney Health initiative, have accelerated development of transformative devices for kidney replacement therapy.
Session on Collaborating for Innovation to Support KidneyX
Eric Hargan, Deputy Secretary at the US Department of Health and Human Services (HHS) began the second day by sharing HHS’s priorities for kidney care. First, to increase efforts at preventing, detecting, and slowing the progression of kidney diseases. Second, to provide more treatment options to people with kidney failure. Third, to increase the number of transplantable organs and develop wearable and artificial kidneys.