The American Society of Nephrology (ASN) and members of the Kidney Health Initiative’s Patient and Family Partnership Council (KHI PFPC) met with leaders from across the U.S. Department of Health and Human Services (HHS) including Secretary Alex Azar on Wednesday, May 16 to show their support for KidneyX.
ASN and the U.S. Department of Health and Human Services (HHS) have sent a clear signal in their desire to have new therapies in the kidney space through the signing of a Memorandum of Understanding establishing the Kidney Innovation Accelerator (KidneyX), a collaborative environment in which a community of researchers, innovators, and investors can participate. This new public-private partnership aims to prevent future kidney disease, while improving the lives of the 850,000,000 people worldwide who are currently affected by accelerating innovation in the prevention, diagnosis, and treatment of kidney diseases.
The National Institutes of Health (NIH) announced the national enrollment date for its All of Us Research Program, a groundbreaking scientific effort to gather data from one million individuals living in the United States. This program will accelerate research by producing new knowledge with the goal of developing personalized and highly effective health care to treat diseases. In preparation for its national launch, the program enrolled 25,000 participants as part of its year-long beta testing phase. Enrollment will be open to people ages 18 and older, regardless of health status, with plans for future phases of the program to include children.
The National Institutes of Health Common Fund has recently announced a new funding opportunity from the Human Biomolecular Atlas Program (HuBMAP). HuBMAP aims to accelerate the development of the next generation of tools and techniques to generate 3D tissue maps through an open data platform established in partnership with other funding agencies, programs, and the biomedical research community.
Around 17% of American adults have chronic kidney diseases (CKD), and the rate of prevalence is higher U.S. Veterans. CKD, if not treated appropriately, can ultimately lead to kidney failure requiring either dialysis or a transplant.
Patients with CKD require complex and unique dietary modifications and currently rely on dietitians that provide Medical Nutritional Therapy and static printed materials. A new mobile app is needed that provides autonomy and personalized features to help patients make informed food choices.
At ASN Kidney Week 2017, Bruce D. Greenstein, U.S. Department of Health and Human Services (HHS), Chief Technology Officer, highlighted the need for innovation in the nephrology space.
While citing that each year more than 100,000 Americans start hemodialysis, Mr. Greenstein shared his personal connection with kidney failure and dialysis. Mr. Greenstein’s mother was on dialysis for fourteen years and he shared his observation that not much changed between her last round of dialysis and her first. The experiences of kidney disease patients, like Mr. Greenstein’s mother, the need for us to envision a world in which kidney disease patients and their care partners can live meaningful, productive lives. A world in which patients no longer even need dialysis.
The American Society of Nephrology and more than 100 organizations from the broader medical research community united to express opposition to the Administration’s proposed 21% cut in the National Institutes of Health (NIH) budget and drastic reductions in NIH support for facilities and administrative (F&A) costs. The united stance is included in a letter delivered Wednesday, August 23, to the Office of Management & Budget Director John Michael Mulvaney and Department of Health and Human Services Secretary Thomas E. Price, MD.
The National Institutes of Health’s (NIH) All of Us Research Program is collecting data from more than one million people to accelerate health research and medical innovation through precision medicine. This historic project aims to generate new knowledge with the goal of developing more effective therapies to treat diseases by leveraging the statistical power of a cohort of this size.
After hearing many thoughtful comments and concerns from the medical research community, the National Institutes of Health (NIH) announced that it will not implement the proposed Grant Support Index (GSI). The stated goal of the proposed GSI was to improve NIH funding support for early- and mid-career investigators to stabilize the biomedical workforce. However, almost immediately following the announcement of the GSI in May, NIH received an array of comments and concerns from the research community addressing the GSI methodology for assessing research impact, and possible negative effects on collaborative research, complex trials, and research networks.
Nearly 50% of US nephrologists are graduates of international medical schools . These individuals provide critical care in our nation’s teaching hospitals and in areas facing critical physician shortages, fight the COVID-19 pandemic on the front lines, and conduct pioneering research in labs across the country.