The third day of the ASN Kidney Week Annual Meeting included a heavy emphasis on the patient perspective of kidney disease. Three concurrent sessions on Saturday afternoon included speakers living with kidney disease. One of those sessions was the Celeste Castillo Lee Memorial Lecture, a unique lecture amongst medical society meetings. Named for a visionary member of the Kidney Health Initiative (KHI) Board of Directors, an advocate for people with kidney diseases, and founder of the KHI Patient and Family Partnership Council, the lecture elevates the patient perspective during the kidney community’s most prestigious meeting.
Kidney News Online reached out to Kevin Fowler to speak about his upcoming talk on how CJASN has incorporated Patient Voice into a monthly feature in the journal at the 2019 Council of Science Editors Annual Meeting on the topic of “Patient Engagement in Scholarly Publishing” on May 6th in Columbus, OH. Mr. Fowler is a Patient Voice Editor for CJASN and will be presenting along with Christine Laine, MD, MPH, FACP, Editor-in-Chief, Annals of Internal Medicine Senior Vice President, American College of Physicians and Bill Silberg, Director of Communications, Patient-Centered Outcomes Research Institute (PCORI).
In a story that has transcended the kidney community and touched the mainstream, David Ayres, a 42-year-old kidney transplant recipient and director of operations at the Mattamy Athletic Centre, a local arena in Toronto, entered an NHL game on February 22nd between the Carolina Hurricanes and Toronto Maple Leafs in Toronto, Canada. When two of the Hurricanes goalies left the game with injuries, Ayres, the emergency backup goalie – a position that is almost never used – was called in to play the remaining 28 minutes of his first ever NHL game. He went on to save 8 of 10 shots and lead the Hurricanes to a 6-3 victory. Even fans of the Toronto Maple Leafs cheered him on, as he is a native of nearby Whitby, Ontario.