Policy

March 9, 2020

Continuing in its bold move up the ladder of electronic health record (EHR) interoperability, the Centers for Medicare and Medicaid Services (CMS) and the Office of National Coordinator for Health Information Technology (ONC) jointly finalized two rules on March 9, 2020 that were originally proposed February 11, 2019. The rules are designed both to allow patients access to their own records and data via smartphone apps and to provide strong deterrents to those who would block data.

March 2, 2020

Building on the excitement surrounding the Executive Order on Advancing American Kidney Health and National Kidney Month in March, the National Kidney Foundation (NKF) launched an ambitious national public awareness campaign – The “Are You the 33%?” campaign – to raise public awareness of the causes and consequences of kidney disease.

February 28, 2020

On February 27, Senators Bill Cassidy, M.D. (R-LA) and Dick Durbin (D-IL) introduced legislation to extend Medicare coverage of immunosuppressive drugs for kidney transplant patients.  A top priority for ASN, the common-sense legislation would extend Medicare coverage of immunosuppressive medications for kidney transplant patients beyond the current 36-month limitation, ensuring that kidney transplant patients do not face losing their transplant due to an inability to afford their medications.

February 24, 2020

In a story that has transcended the kidney community and touched the mainstream, David Ayres, a 42-year-old kidney transplant recipient and director of operations at the Mattamy Athletic Centre, a local arena in Toronto, entered an NHL game on February 22nd between the Carolina Hurricanes and Toronto Maple Leafs in Toronto, Canada. When two of the Hurricanes goalies left the game with injuries, Ayres, the emergency backup goalie – a position that is almost never used – was called in to play the remaining 28 minutes of his first ever NHL game.

February 21, 2020

This week, the Baylor College of Medicine became the first academic center and care provider to publicly announce its support for the changes included in Medicare’s proposed rule on Organ Procurement Organizations (OPOs) Conditions for Coverage: Revisions to the Outcome Measure Requirements for Organ Procurement Organizations – joining the American Society of Nephrology (ASN) in its support of the proposed rule.

February 20, 2020

The Executive Order on Advancing American Kidney Health (Section 8) directed the Secretary of Health and Human Services (HHS) to propose a regulation to remove financial barriers to living organ donation essentially:

February 18, 2020

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) posted its award funding policy for fiscal year (FY) 2020, including released paylines that are better than previous years.

NIDDK is establishing a nominal payline for new (Type 1) and renewal or competing continuation (Type 2) R01 applications of 16th percentile in FY 2020, which is higher than the 13th percentile in FY 2019.

February 10, 2020

An investigation from Kaiser Health News and Reveal from the Center for Investigative Reporting found that “between 2014 and 2019, nearly 170 organs could not be transplanted and almost 370 endured ‘near misses,’ with delays of two hours or more,” due to transportation problems.  Nearly 113,000 people in the United States waiting for transplants, yet many organs, especially kidneys, are needlessly wasted because they do not reach their destination on time due to transportation issues

February 7, 2020

On Thursday, Feb. 6, a panel of leaders in the kidney innovation community highlighted accomplishments made by KidneyX at a congressional briefing in Washington, DC, and called on Congress to support KidneyX.

The briefing, titled KidneyX: Accelerating the Future of Kidney Care, featured a panel of speakers representing the Department of Health and Human Services, the KidneyX steering committee, venture capital, kidney patients, and KidneyX prize winners.

January 27, 2020

On Thursday, January 23 ASN Councilor Crystal Gadegbeku, MD, FASN, along with 4 co-authors representing leading voices in organ and transplant policy, proposed a suite of improvements to the United States’ organ procurement and donation system at the launch of the highly-anticipated Day One Project.

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