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In the first major transformation in kidney care in almost 50 years, the Trump Administration today announced the Advancing the American Kidney Health initiative. The comprehensive kidney health strategy will bring sweeping changes to care for people with kidney diseases, including more choices for dialysis modalities, greater access to transplantation, and concerted support for development of innovative therapies, including artificial kidneys.
Statement of Mark E. Rosenberg, MD, FASN
ASN President
On the Advancing American Kidney Health Initiative
"The American Society of Nephrology (ASN) applauds the bold vision unveiled today by President Donald J. Trump and by Department of Health and Human Services (HHS) Secretary Alex Azar, II, in the Advancing American Kidney Health initiative. Before an audience of more than 500 individuals with kidney diseases, nephrologists, and other kidney community advocates, President Trump signed an Executive Order launching the initiative.
In a recent news story of great success and altruism, the oldest living kidney donor donated a kidney to a neighbor in great need. Frank Dewhurst donated his kidney to Linda Nall, a neighbor who had been struggling with lupus since 1986. At age 84, Dewhurst is now the oldest living kidney donor in the United States. KNO spoke with ASN member, Dr. Hassan Ibrahim, Chief of Nephrology at Houston Methodist Hospital, about the experience.
ASN Communities has relaunched the -AKI Community. To get a behind-the-scenes look at the decision to relaunch the AKI Community, as well as information on the Community Leaders that will be posting educational information and responding to your questions, Kidney News Online reached out to Dr. Javier Neyra, MD, MS, FASN, one of the new AKI Community Leaders.
In February, the Centers for Medicare & Medicaid Services (CMS) and the Office of the National Coordinator (ONC) for Health Information Technology released a set of proposed rules to address interoperability, information blocking, and patient access to data and electronic health record (EHR) certification criteria.
ASN has expressed its support for this overall proposed rule set to promote electronic data exchange and stop data blocking to improve health care quality. These will ensure that patients have timely access to important health information and have the ability to share it confidentially with the physician of their choice.
The Centers for Disease Control and Prevention (CDC) and two health departments are investigating a large cluster of peritonitis cases among patients undergoing peritoneal dialysis. Many of the peritonitis events under investigation were caused by Serratia marcescens or other gram-negative pathogens.
CDC is requesting U.S. clinicians to report peritonitis cases in peritoneal dialysis patients treated by the same center that meet the following criteria:
The White House announced Tuesday that the administration is taking action on two policy priorities for ASN: improving the data used to evaluate Organ Procurement Organizations (OPOs) and removing financial barriers to living donation.
The Unified Spring Agenda, released May 22, provides insight into which issues the administration will address through a proposed rule process in the coming months. ASN urged Secretary Azar and other senior administration officials to address these issues during a February meeting and applauds its bold leadership on both fronts.
Announced this week, the NKF Patient Network “will create an interactive community of chronic kidney disease (CKD) patients that link patient-entered data on their health history, outcomes and preferences with clinical and laboratory data obtained from electronic health records. This unique combination of data collected will enable individualized educational resources, research, clinical care and health policy decisions to be centered on the patient.”
After strenuous objection from the American Society of Nephrology (ASN) and its fellow coalition members in the Partnership for Part D Access, the Centers for Medicare & Medicaid Services (CMS) issued a final rule on May 16, 2019, on Medicare Part D prescription drugs that dropped an earlier CMS proposal that would have undermined current protections for the six protected classes of drugs. The final rule maintains protections for these classes: 1) antidepressants; 2) antipsychotics; 3) anticonvulsants; 4) immunosuppressants for treatment of transplant rejection; 5) antiretrovirals; and 6) antineoplastics. ASN Policy wrote about an administration proposal to alter the status of the six classes earlier this year in KNO when ASN submitted comments to Medicare on its Medicare Advantage and Part D Drug Pricing Proposed Rule on January 25.
Kidney News Online reached out to Kevin Fowler to speak about his upcoming talk on how CJASN has incorporated Patient Voice into a monthly feature in the journal at the 2019 Council of Science Editors Annual Meeting on the topic of “Patient Engagement in Scholarly Publishing” on May 6th in Columbus, OH. Mr. Fowler is a Patient Voice Editor for CJASN and will be presenting along with Christine Laine, MD, MPH, FACP , Editor-in-Chief, Annals of Internal Medicine Senior Vice President, American College of Physicians and Bill Silberg , Director of Communications, Patient-Centered Outcomes Research Institute (PCORI).
