In April 2022, the Office of Management and Budget released the annual President's Budget for fiscal year (FY) 2023. The President's Budget is a non-binding request to Congress that describes the priorities of the current administration. In the words of President Biden, “Don't tell me what you value. Show me your budget, and I will tell you what you value.”
The priorities of the current administration are clear. For the Department of Health and Human Services, the budget prioritizes “tackling the COVID-19 pandemic, expanding access to care, addressing health disparities, strengthening behavioral health, and promoting the well-being of children, families,
The American Society of Nephrology (ASN) and the American Association of Kidney Patients (AAKP) partnered together for the 10th Annual Kidney Health Advocacy Day on March 23. Advocates from both organizations met virtually with representatives, senators, and their respective staffs to urge Congress to support key legislative priorities including the following:
supporting kidney health research at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK),
funding kidney health innovation for Kidney Innovation Accelerator (KidneyX), and
protecting living donors to increase organs available for transplant.
Kidney research leads to the discovery of new methods to detect kidney diseases, and
Congress is staring down a significant number of legislative backlogs as it begins the 2022 calendar year. Congress must still finalize fiscal year (FY) 2022 appropriations before FY 2023 appropriations negotiations can commence, confirm the heads of both the US Food and Drug Administration and National Institutes of Health amid the global COVID-19 pandemic, and confirm a Supreme Court justice to replace retiring Justice Breyer, all with mid-term elections fast approaching this fall. But, there is cause for genuine optimism among the kidney community, as improving kidney health through transformative regulatory and legislative action continues to receive robust bipartisan support
KidneyX, the public-private partnership between the American Society of Nephrology (ASN) and the US Department of Health and Human Services (HHS) to accelerate innovation in the diagnosis, prevention, and treatment of kidney diseases, was included in President Biden's first annual budget proposal for fiscal year 2022 (FY 22), announced by the Biden-Harris administration on May 28, 2020. Following the largest showing of support to date from members of the US House of Representatives and Senate—an effort led by Rep. Suzan DelBene of Washington, Rep. Larry Bucshon of Indiana, Rep. Terri Sewell of Alabama, Rep. Brian Babin of Texas, Sen. Ben
Members of the US Congress House Committee on Oversight and Reform called for urgency to increase the availability of organs for transplant and improve care for patients during a May 4, 2021, hearing on the US organ transplant system. Led by Committee Chair Raja Krishnamoorthi of Illinois and Ranking Member Michael Cloud of Texas, the hearing featured testimony from patients, organ donors, and transplant professionals and at times impassioned exchanges between members of the committee and Organ Procurement Organization (OPO) leadership.
“It is a very exhausting process waiting for a transplant,” said Tonya Ingram, a hearing witness and patient on
The president's request for fiscal year (FY) 2022 emphasized the Biden-Harris administration's strong support of and commitment to medical research and scientific innovation. While the president's complete budget will not be finalized by the start of the annual congressional appropriations process, typical during a presidential transition, the administration's proposal for discretionary funding in FY22 still provides useful insight into key administration priorities.
The administration proposed increasing the budget of the National Institutes of Health (NIH) to $51 billion, a $9 billion increase over FY21 levels (1). A significant portion of that increase would go to establishing the Advanced
The American Society of Nephrology (ASN) is actively engaging with the federal government on multiple fronts on a host of issues, from COVID-19 to addressing equity in kidney healthcare. Three current fronts of activity focus on the kidney care payment models, transplant access, and support for payment pathways for innovative devices.
Even before the recent delay in the voluntary Kidney Care Choices (KCC) Model, ASN had engaged the Center for Medicare and Medicaid Innovation (CMMI) to advocate for changes in the model based on ASN members' concerns. With ASN's request for CMMI to use the delay until January
On Wednesday, April 14, advocates from the American Association of Kidney Patients (AAKP) and ASN will meet with their members of Congress during the 9th Annual Kidney Health Advocacy Day and call for passage of the Living Donor Protection Act of 2021.
A longstanding advocacy priority of ASN and the broader kidney health community, the Living Donor Protection Act guarantees that living donors have access to life, disability, and long-term care insurance with full coverage and without higher premiums and codifies that the Family and Medical Leave Act protects the employment of living donors after taking time off to donate
Kidney health care has been constrained for decades by silos of care: chronic kidney disease (CKD), kidney failure and dialysis, and kidney transplant. ASN and its members have long advocated for a change in payment policy and care delivery approaches to disrupt a system that traditionally placed most all the financial incentives on kidney failure treatment. “The current Medicare End-Stage Renal Disease benefit program has long focused on dialysis at the expense of going upstream to slow CKD progression and focusing on pre-emptive transplantation,” said Susan E. Quaggin, MD, FASN, ASN President.
On January 20, 2021, Joseph R. Biden Jr. and Kamala D. Harris were sworn in as President and Vice President of the United States. Their ascension to the White House, amid the twin public health crises posed by the COVID-19 pandemic and system racism, provides new opportunities for the kidney community to collaborate and advance polices that will benefit people with kidney diseases and their families.
The Biden-Harris ticket campaigned on the need for the country to build back better, and the nation owes it to the 37 million Americans living with kidney diseases, especially those from communities of color