On September 28, advocates from patient and professional kidney health organizations from across the nation will call on their members of Congress to pass the Living Donor Protection Act (LDPA) as part of Kidney Community Advocacy Day 2022.
Momentum to pass the LDPA has been building steadily this year due to the efforts of advocates, including ASN's March 2022 Kidney Health Advocacy Day. The current draft of the legislation continues to add co-sponsors, bringing the total to 134 co-sponsors in the House and 41 in the Senate, the highest number of co-sponsors ever received by the legislation.
The Senate Finance Committee raised numerous allegations of mismanagement, resistance to oversight, and poor performance against the leadership of the United Network for Organ Sharing (UNOS) in a hearing held Wednesday, August 3, 2022. According to the committee, these allegations are part of a broader pattern of failure from UNOS—the current federal contractor managing the Organ Procurement and Transplantation Network (OPTN)—that has claimed lives and thousands of discarded organs, including one in every four donated kidneys.
ASN has advocated for numerous improvements to the transplant system, with the goal of “transforming transplant,” as outlined in the We’re United 4 Kidney
The House Appropriations Committee on Labor, Health and Human Services, Education, and Related Agencies released its draft funding bill for fiscal year (FY) 2023 on June 22. The report language in the bill bolsters the nation's public health infrastructure and strengthens biomedical research and innovation. The bill allocates funding for and directions to agencies and programs on policy priorities for which ASN and the broader kidney health community have advocated. Key policies are highlighted here.
Centers for Disease Control and Prevention (CDC)
The committee includes a total of $10.5 billion for the CDC, which is $2 billion more than the
The US health care workforce is facing a shortage impacting those seeking kidney care. In 2019, the Association of American Medical Colleges projected that demand for physicians will continue to outpace supply, and the United States will see a shortage of up to 122,000 physicians by 2032 (1). Although this threat facing the US health care workforce has been exacerbated by the COVID-19 pandemic, the kidney care workforce is already facing shortage challenges. Just one practicing nephrologist is available for every 3427 people living with kidney diseases in the United States. As a talented and diverse kidney care
In April 2022, the Office of Management and Budget released the annual President's Budget for fiscal year (FY) 2023. The President's Budget is a non-binding request to Congress that describes the priorities of the current administration. In the words of President Biden, “Don't tell me what you value. Show me your budget, and I will tell you what you value.”
The priorities of the current administration are clear. For the Department of Health and Human Services, the budget prioritizes “tackling the COVID-19 pandemic, expanding access to care, addressing health disparities, strengthening behavioral health, and promoting the well-being of children, families,
The American Society of Nephrology (ASN) and the American Association of Kidney Patients (AAKP) partnered together for the 10th Annual Kidney Health Advocacy Day on March 23. Advocates from both organizations met virtually with representatives, senators, and their respective staffs to urge Congress to support key legislative priorities including the following:
supporting kidney health research at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK),
funding kidney health innovation for Kidney Innovation Accelerator (KidneyX), and
protecting living donors to increase organs available for transplant.
Kidney research leads to the discovery of new methods to detect kidney diseases, and
Congress is staring down a significant number of legislative backlogs as it begins the 2022 calendar year. Congress must still finalize fiscal year (FY) 2022 appropriations before FY 2023 appropriations negotiations can commence, confirm the heads of both the US Food and Drug Administration and National Institutes of Health amid the global COVID-19 pandemic, and confirm a Supreme Court justice to replace retiring Justice Breyer, all with mid-term elections fast approaching this fall. But, there is cause for genuine optimism among the kidney community, as improving kidney health through transformative regulatory and legislative action continues to receive robust bipartisan support
KidneyX, the public-private partnership between the American Society of Nephrology (ASN) and the US Department of Health and Human Services (HHS) to accelerate innovation in the diagnosis, prevention, and treatment of kidney diseases, was included in President Biden's first annual budget proposal for fiscal year 2022 (FY 22), announced by the Biden-Harris administration on May 28, 2020. Following the largest showing of support to date from members of the US House of Representatives and Senate—an effort led by Rep. Suzan DelBene of Washington, Rep. Larry Bucshon of Indiana, Rep. Terri Sewell of Alabama, Rep. Brian Babin of Texas, Sen. Ben
Members of the US Congress House Committee on Oversight and Reform called for urgency to increase the availability of organs for transplant and improve care for patients during a May 4, 2021, hearing on the US organ transplant system. Led by Committee Chair Raja Krishnamoorthi of Illinois and Ranking Member Michael Cloud of Texas, the hearing featured testimony from patients, organ donors, and transplant professionals and at times impassioned exchanges between members of the committee and Organ Procurement Organization (OPO) leadership.
“It is a very exhausting process waiting for a transplant,” said Tonya Ingram, a hearing witness and patient on
The president's request for fiscal year (FY) 2022 emphasized the Biden-Harris administration's strong support of and commitment to medical research and scientific innovation. While the president's complete budget will not be finalized by the start of the annual congressional appropriations process, typical during a presidential transition, the administration's proposal for discretionary funding in FY22 still provides useful insight into key administration priorities.
The administration proposed increasing the budget of the National Institutes of Health (NIH) to $51 billion, a $9 billion increase over FY21 levels (1). A significant portion of that increase would go to establishing the Advanced