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David White

The Executive Order on Advancing American Kidney Health (Section 8) directed the Secretary of Health and Human Services (HHS) to propose a regulation to remove financial barriers to living organ donation essentially:

ASN supported the proposed rule on Removing Financial Disincentives to Living Organ Donation issued by Health Resources and Services Administration (HRSA) of HHS and recommended further changes in its comment letter to the agency February 18, 2020.

Zachary Kribs is the ASN Government Affairs Specialist

The House Energy and Commerce Committee held a hearing on Wednesday, January 8th, on the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2019, advancing a long-standing legislative priority of the American Society of Nephrology.

The legislation, introduced in late December by Representative Ron Kind and Representative Michael Burgess, along with three other original sponsors, would allow Medicare to pay for immunosuppressive drugs for kidney transplant patients for the lifetime of the organ transplant. Medicare currently reimburses immunosuppressive drug coverage for only 36 months, leaving many individuals who cannot afford other coverage at risk of losing the transplanted kidney. The legislation is a top priority of ASN and has been the focus of several advocacy initiatives, including Kidney Community Advocacy Day convened by ASN in November 2019.

Zachary Kribs

The Living Donor Protection Act of 2019, a longstanding priority of the ASN Policy and Advocacy Committee and the larger kidney and transplant community, has been reintroduced in the House of Representatives and Senate by Representatives Jaime Herrera-Beulter (R-WA) and Jerry Nadler (D-NY), and Senators Kristen Gillibrand (D-NY) and Tom Cotton (R-AR).

On February 15th, 2019, American Society of Nephrology (ASN) President Dr. Mark Rosenberg sent a letter to the lead sponsors of the legislation to commend their efforts to provide hope to the more than 700,000 Americans with kidney failure, including the nearly 100,000 people on the waitlist to receive a kidney.