Policy

ASN and AAKP Advocates Are on Capitol Hill Urging Congress to Support KidneyX

Advocates from the American Society of Nephrology (ASN) and the American Association of Kidney Patients (AAKP) are meeting with representatives, senators, and their respective staffs today, March 20th, to urge Congress to support KidneyX, a public-private partnership to accelerate innovation in the prevention, diagnosis, and treatment of kidney diseases.

Potential game-changing exchange: Extending coverage for immunosuppressant drugs beyond 3-year limit for patients after a kidney transplant could help Medicare

In a potentially game-changing exchange yesterday at a House Appropriations subcommittee hearing, Health and Human Services (HHS) Secretary Alex M. Azar, II, stated that a preliminary HHS Office of the Actuary analysis indicates that the savings generated by averting dialysis would be greater than the cost required to extend coverage for immunosuppressant drugs. While noting that any potential savings would be “specific to the design of any actual policy,” the Secretary underscored that HHS is “very focused on ways we can incentivize toward transplantation.”

Precision Medicine 2019: March Special Section

Kidney News is pleased to present this edition’s special section on precision medicine. The ability to derive diagnosis and care, specific to the individual patient and the exact timing and nature of their disease process, is anticipated to result in a huge leap forward in the efficacy and safety of treatment. A PubMed search revealed more than 50,000 articles about this topic, including more than 1600 articles when restricted to “kidney,” and the rate of new articles is rapidly climbing. It thus seemed appropriate to review this approach with our audience.

ASN statement: Secretary Azar’s speech on HHS-wide comprehensive kidney strategy

On Monday March 4th, Secretary Alex M. Azar II delivered a speech at the 6th Annual Kidney Patient Summit outlining both KidneyX and the strategic pillars of establishing an HHS-wide approach to comprehensive kidney care. ASN released a statement from ASN President Mark E. Rosenberg, MD, FASN, congratulating Secretary Azar and HHS on implementing this bold plan to better serve kidney disease patients and confirming ASN’s commitment to work together to achieve this goal.

850 million people suffer from kidney disease: Joint release from ASN, ERA-EDTA, ISN

In a joint press release in June 2018, ASN, ERA-EDTA, and ISN publicized that the current number of people who suffer from kidney diseases worldwide has reached over 850 million.

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IDs of March: Support students, fellows, educators, and investigators with the ASN Foundation

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The ASN Foundation for Kidney Research (ASN Foundation) is introducing a campaign that asks supporters to celebrate their pasts while directly supporting students, fellows, educators, and early-career investigators who are changing the future of kidney care.

ASN’s In The Loop Celebrates National Kidney Month in March

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In The Loop (ITL), the American Society of Nephrology’s daily e-news briefing for members that highlights exciting announcements and current research in the world of nephrology, will focus on nephrology careers throughout the month of March, which is also National Kidney Month.

ASN and NIDDK initiatives to foster kidney research and investigators

Several initiatives have been implemented by NIDDK and ASN in order to foster kidney research and encourage research investigators as the NIH Division of Kidney, Urologic, & Hematologic Diseases (KUH) saw a 2% decrease in funding from the 2019 NIH budget.

This article includes a list of initiatives taken from an upcoming article in Kidney News March issue.

The Living Donor Protection Act of 2019 Reintroduced in House and Senate

The Living Donor Protection Act of 2019, a longstanding priority of the ASN Policy and Advocacy Committee and the larger kidney and transplant community, has been reintroduced in the House of Representatives and Senate by Representatives Jaime Herrera-Beulter (R-WA) and Jerry Nadler (D-NY), and Senators Kristen Gillibrand (D-NY) and Tom Cotton (R-AR).

Data Blockers Beware - Annoucement at HIMSS19

In a bold move up the ladder of electronic health record (EHR) interoperability, the Centers for Medicare and Medicaid Services (CMS) and the Office of National Coordinator for Health Information Technology (ONC) released two proposed rules February 11 designed to allow patients access to their own records and data – particularly via apps – and provide strong deterrents to those who would block data.

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