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Patients with ESRD Put a High Priority on Alleviating Symptoms That Interfere with Daily Life

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As a dialysis patient and peer coach, Caroline Wilkie knows how postdialysis fatigue and cramping can get in the way of socializing, work, or other responsibilities.

“A lot of us don’t plan things in advance because we never know how tired we’re going to be,” Wilkie said.

Her views and those of other patients with ESRD took center stage recently in a project led by ASN’s Kidney Health Initiative (KHI), a public–private partnership between ASN and the U.S. Food and Drug Administration (FDA), aimed at understanding which symptoms patients find most troubling. The project found that insomnia, fatigue, and cramping

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