• 1.

    National Living Donor Assistance Center. https://www.livingdonorassistance.org/.

  • 2.

    American Kidney Fund. http://www.kidneyfund.org/.

  • 3.

    Hays RE, et al.. Barriers to the use of a federal travel grant by living kidney donors. Clin Transplant 2017, in press.

  • 4.

    Tushla L, et al.. Living-donor kidney transplantation: Reducing financial barriers to live kidney donation—Recommendations from a consensus conference. Clin J Am Soc Nephrol 2015; 10:16961702.

    • Crossref
    • Search Google Scholar
    • Export Citation
  • 5.

    Hinck BD, et al.. Assessing transplant attitudes: Understanding minority men’s perspectives on the multifarious barriers to organ donation. J Racial Ethn Health Disparities 2017; 4:580586.

    • Crossref
    • Search Google Scholar
    • Export Citation
  • 6.

    Bratton C, Chavin K, Baliga P. Racial disparities in organ donation and why. Curr Opin Organ Transplant 2011; 16:243249.

Transplantation: Increasing Living Donation

  • 1 Kevin Fowler is president of The Voice of the Patient. Marian Charlton, RN, is chief transplant coordinator at Weill Cornell Kidney and Pancreas, The New York–Presbyterian Hospital/Weill Cornell Medicine Center. Mendy Reiner is founder and chairman of Renewal in Brooklyn.
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Photo courtesy of Sharon Waggoner

Kevin’s story

Fowler: In December 2000, I began to notice lower back pain. Initially, I attributed the pain to carrying large amounts of wood to our fireplace, but in the back of my mind, I knew the source of my pain could be something else. My deceased mother had polycystic kidney disease (PKD). I saw her suffer from constant back pain due to the enlarged size of her kidneys caused after PKD. Up until this time, I never had the courage to determine if I too had PKD. I was too scared after seeing