Making a Difference for Kidney Health

Representative David Jolly of Florida meets to discuss the Living Donor Protection Act with Kidney Health Advocacy Day volunteers from ASN and AAKP.

On April 21, volunteers visited 78 Congressional offices and asked US Senators and Representatives to co-sponsor this pending legislation. Patients and volunteers made these points:

•           While transplantation is the optimal treatment for most patients with kidney failure, the pool of donors does not meet demand.

•           To help increase the donor pool, potential kidney donors should be protected from discrimination by insurers, covered by FMLA, and provided educational materials that allow them to make fully informed decisions about donation.

Crystal Gadegbeku, MD captured the essence of why ASN and other groups commit resources to making the case with legislators.

“Without these efforts, our legislators have no idea of the importance of the bill, nationally and in their own states, and definitely can’t put a face on the patient barriers. I feel passionately that we have opportunities beyond our stethoscopes and local environments to make changes that would have huge impact.”

Please add your voice to make your representatives understand how much this legislation would improve kidney care.

Download fact sheets on kidney disease in your state, and on the Living Donor Act. Send any questions or comments to info@kidneynews.org

Read insights from Kidney Health Advocacy Day participants and all the details of this successful visit in the June print issue of ASN Kidney News.

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Representative David Jolly of Florida meets to discuss the Living Donor Protection Act with Kidney Health Advocacy Day volunteers from ASN and AAKP.

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On April 21, volunteers visited 78 Congressional offices and asked US Senators and Representatives to co-sponsor this pending legislation. Patients and volunteers made these points:

•           While transplantation is the optimal treatment for most patients with kidney failure, the pool of donors does not meet demand.

•           To help increase the donor pool, potential kidney donors should be protected from discrimination by insurers, covered by FMLA, and provided educational materials that allow them to make fully informed decisions about donation.

Crystal Gadegbeku, MD captured the essence of why ASN and other groups commit resources to making the case with legislators.

“Without these efforts, our legislators have no idea of the importance of the bill, nationally and in their own states, and definitely can’t put a face on the patient barriers. I feel passionately that we have opportunities beyond our stethoscopes and local environments to make changes that would have huge impact.”

Please add your voice to make your representatives understand how much this legislation would improve kidney care.

Download fact sheets on kidney disease in your state, and on the Living Donor Act. Send any questions or comments to info@kidneynews.org

Read insights from Kidney Health Advocacy Day participants and all the details of this successful visit in the June print issue of ASN Kidney News.