Dialysis

Dr. Ian de Boer on signs of a crisis in nephrology

In an article by Manisha Jha of The Daily student publication at the University of Washington, Dr. de Boer speaks personally about his recent CJASN articles based on burnout in nephrology.


"'We wanted to highlight that to the community that this is something that many people are experiencing and open a dialogue,” de Boer said.

CJASN: Employment among patients starting dialysis in the United States

A recent study published by the Clinical Journal of Nephrology (CJASN) found that employment was low among patients starting dialysis throughout the study period at 23% to 24%, and 38% of patients who were employed six months prior to being diagnosed with kidney failure stopped working by the time they initiated dialysis.

Kidney Health Initiative (KHI): Prioritizing Symptoms of ESRD Patients for Developing Therapeutic Interventions workshop

The “Prioritizing Symptoms of ESRD Patients for Developing Therapeutic Interventions” workshop took place from January 8th through January 10th in Washington, DC. The meeting convened various stakeholders, including patients and care givers. Discussion centered around three symptoms of ESRD that were identified as priorities through previous patient focus groups: Fatigue, Insomnia, and Muscle Cramps.

The goal of the meeting was to:

HHS Announcement to Launch Kidney Innovation Accelerator at ASN Kidney Week 2017 Available

At ASN Kidney Week 2017, Bruce D. Greenstein, U.S. Department of Health and Human Services (HHS), Chief Technology Officer, highlighted the need for innovation in the nephrology space.

ASN Partners with VA Center for Innovation on My Kidney Nutrition App Features Challenge

Around 17% of American adults have chronic kidney diseases (CKD), and the rate of prevalence is higher U.S. Veterans. CKD, if not treated appropriately, can ultimately lead to kidney failure requiring either dialysis or a transplant.

 

A new mobile app is needed that provides autonomy and personalized features to help patients make informed food choices.

 

Physician stress and burnout: The causes and potential solutions for nephrologists

At Kidney Week in New Orleans, I presented a session on the impact of growing stress and burnout in Nephrologists and how it might affect physician attitudes and behaviors toward patient care. The main point of my talk was to recognize how serious an issue physician dissatisfaction, stress, and burnout is, the causes and the barriers, and what can be done to help our physicians (and staff) better adjust to the pressures of today’s health care environment.


Let me explain.

Inside the UCLA voucher program that is overcoming chronological incompatibility and saving lives

The UCLA Kidney Transplant Program started a voucher program in 2014 which has already proven its utility and saved 25 lives. “The program works like this: The voucher donor gives a kidney to a stranger on dialysis. Often that recipient had a friend or family member who had wanted to be a donor but couldn’t due to incompatibility.

Roughly 5,000 Puerto Ricans with kidney disease at risk with limited access to dialysis

Mike Spigler, vice president of patient services at the American Kidney Fund, said that it is an ‘extremely tenuous situation’ for the roughly 5,000 people on the island who rely on dialysis to stay alive. The dialysis centers need diesel fuel to power their generators and ‘a lot of them are down to a day or two of fuel’ he said”.

NKF releases results from patient-led survey on kidney disease research priorities

Yesterday, September 28, 2017, the National Kidney Foundation (NKF) published findings from a “year-long outreach and engagement with patients and caregivers to identify patient-led kidney disease research priorities”. The findings “include the research topics that matter most to patients and family members affected by kidney disease; barriers that prevent patients from being active participants in kidney disease research or part of the research team; and what potential solutions may exist”.

KHI project fosters patient input into recently approved home hemo-dialysis device

During an August 2015 public workshop hosted by the Kidney Health Initiative (KHI), a public-private partnership between the American Society of Nephrology (ASN) and the Food and Drug Administration (FDA), patients were asked for their thoughts on how best to contribute to future medical device development.  “Patient representatives argued that the care partner requirement effectively ruled out home treatment for those patients who lived alone or who could not afford to hire a care partner".1

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